Healthcare coalition on data protection calls for EU Data Protection Regulation to recognise the essential role of personal data in healthcare
Brussels– 29 January 2013 - Today the Healthcare Coalition on Data Protection published a joint statement highlighting the role of personal data in delivering high quality, patient-centred healthcare and conducting effective clinical and public health research, while expressing concerns on the potential negative impact of the proposed EU General Data Protection Regulation in these areas.
This Healthcare Coalition was recently formed and includes several key stakeholders active in the healthcare and related sectors in Europe.
The Coalition aims to raise awareness of the essential role the processing and sharing of personal data plays in improving effective, sustainable and innovative healthcare while supporting health research of significant public interest.
This Coalition is the first initiative of its kind gathering key actors in the health sector, including physicians, dentists, healthcare providers, medical researchers and healthcare technology and mobile health providers around one single cause: the need to facilitate health data processing for health purposes, in a reliable and responsible manner (with the highest respect for EU citizens’ fundamental right to data protection and privacy). By joining forces, the Coalition is looking forward to making a positive contribution to the current debate on the proposed EU Data Protection Regulation in the interests of patients and the healthcare sector.
For more information, contact:
Nicole Denjoy Kathryn Sheridan
COCIR Secretary General COCIR Communications Advisor
Tel: +32 (0)2 706 8961 Tel: +32 (0)496 116198
denjoy@cocir.org press@cocir.org
The Healthcare Coalition on Data protection gathers: CPME, CED, HOPE, FEAM, COCIR, EFPIA, GSMA, Continua Health Alliance
About EFPIA:
EFPIA represents the pharmaceutical industry operating in Europe. Through its direct membership of 33 national associations and 39 leading pharmaceutical companies, EFPIA provides the voice of 1,900 companies committed to researching, developing and bringing new medicines to improve health and quality of life around the world. The pharmaceutical industry invests 27.5 billion on research and development per year in Europe and directly employs 660,000 people including 116,000 in R&D units in Europe.
EFPIA members are committed to delivering innovative medicines to address unmet needs of patients and reducing the burden of chronic diseases for Europe’s ageing population. EFPIA believes in close cooperation with its stakeholders to help create sustainable healthcare systems and to develop prompt responses to health threats in Europe.
Media Contact:
Nicholas Elles
Communications Manager
EFPIA
Rue du Trone, 108
1050 Brussels
TEL: +32 (0)2 626 24 79
Email : communications@efpia.eu